Monday, December 10, 2012

One Great Dad and So Many Wonderful People!

Many years ago, when I was little (the kids I know think that was a LONG time ago), I used to be sad that my birthday was in December. It was right between Thanksgiving and Christmas, so my siblings who had gone away to college (I was only 5 when my oldest sister went) would come home for Thanksgiving and for Christmas, but it was too hard for them to come celebrate my birthday in the middle of the two holidays. I don't remember overly complaining about it, but like I say, I was kind of sad that my family couldn't come.

One year my dad told me that he was going to make my birthday special. He proceeded to tell me that we were going to celebrate by getting the Christmas tree on the weekend closest to my birthday. I got to pick out our trees and be in charge of decorating. I still remember how special I felt. Although my dad still knows me, he doesn't remember how he blessed me those many years ago. However, his thoughtfulness has impacted me all these years, as I too try to think of ways to bless others.

Today, after church and the traditional taking my parents to lunch, I came home and went to bed for awhile. As I was waking from my nap, I heard the cracking of wood outside and then the light beam from a flash light came through my window. I heard people trying to keep secrets and trying to be quiet so as not to wake me. I came out of my room and saw the girls that live here making me birthday cards. They gave me cookies (I don't think birthday cookies have calories). Their mom, was making me birthday dinner. Then, commotion at the door as Jonathan and Josiah attempted to get a very large and natural looking tree into the house. How thoughtful Josiah was to remember to continue a tradition that was started years ago and bring the tree in to decorate for my birthday. The day started out a little rough because I was late taking my myasthenia pill this morning and couldn't hold my head up during church (it was OK, people thought I was praying all that time-now they probably think I am very spiritual!). The cool thing was that after resting and taking my medicine, I was strong and got to help decorate the tree! It is such a cool tree! Our definition of cool is maybe different than other people's. Our trees are very unique, we just let them grow and see how they turn out.

As I sit here looking at the tree and listening to Christmas music, I reflect on all my blessings...on all the people that have made my life rich.

God bless you, every one.

Saturday, December 1, 2012

Trust, Thankfulness and Self-esteem


I did not mean to go this long without doing a blog. I wanted to do one entitled, "In defense of Autumn", but I was always too exhausted to even transfer the pictures I wanted to use onto the blog. Now that Thanksgiving is past, I guess it is too late. It was going to be a fun, happy blog and I like fun, happy blogs. I asked God the other day why it seemed my lot to write deep, emotional blogs when, really, I like to laugh and have fun as well. I didn't get an answer.

Quite frankly, this Myasthenia thing has been kicking me. I continued to try to fight back and continue to do the things I felt I needed to do, but it didn't work. Two weeks ago I ended up at OHSU because of a "myasthenic crisis". Whereas I am called an under-responder to my anaphylaxis (it doesn't scare me), I was totally traumatized over the myasthenic thing. It has caused me to ponder things a lot.

Josiah was at college and very worried about me, so when I got out of the hospital, Joyce drove me to his school to pick him up and bring him home for a day. I told him that I knew I didn't look so good, but that I wanted him to know that I was improving rapidly. He told me that was no comfort to him because I looked really bad and if I was a lot worse than that, he found it very scary. Joyce didn't know the way to get home from Josiah's college, so I went along when she took him to school, so I could help her find the way back. It just so happened that a huge storm came through and stranded us in Seaside, OR.

It wasn't lost on me that this could well be God's way of getting me to sit still for awhile. So I sat and I pondered. I asked myself a lot of questions. I asked God a lot of questions. I didn't ask people a lot of questions because people stress over me and I don't want to make it worse. I felt traumatized. Mental health professionals call the "Glad Game", "re-framing". So let's just say, I kept trying to re-frame things and no matter how I did it, it was hard. I kept hearing this God voice in my head saying, "trust me" and I can say that I honestly did not quit trusting. I still believed that all days are good, but some days are hard and I believed that God never wastes my pain. However, hard is, well, hard. Just because I believe all those things does not make me immune to intense pain.

I remember sitting and looking out the window at people in the hot tub and people in the pool and people just walking on the beach and I wondered if it was a sin to want so badly to just be able to do the things they were doing.

I thought back on my life and tried to figure out why losing responsibilities made me feel so lost and useless. I thought back to ten years ago, when my ex-husband left. I felt less than worthless at that point. I had tried so hard to please, that my whole life revolved around trying to please. When he left, I no longer knew why I did anything I did other than to please him. I slowly found myself again. I determined that I would be a success, and in people's eyes I was. People thought I could do anything and fix everything. No one knew how I could do so much. By the time of the accident, I realized that I had become too independent. You see, if you depend on others, they may let you down. It is safer to rely on yourself even if it is a struggle. It wasn't even just about being a success or being independent, it was about wanting to help people. I love to help people.

Now I was faced with just me apart from what I accomplish (or don't accomplish). How could I give up any more responsibilities and still have any self worth left. (Once again, some of you are screaming the answer...I know and have known the answer, but knowing and feeling are two different things). Silent tears...so many silent tears during those days of questioning.

When we got home, I went to my mom's house. My brother was there. I told him how the myasthenia thing had scared me and I never wanted it to happen again. He broached the subject of moving my parents to the house next to one of my sister's to relieve me of the responsibilities I currently had with them. For 10 years I have been helping them. Long before people knew they needed help, I was helping them. I always wanted them to be able to stay at home until they passed. I planned to make that a reality for them, but I knew that what my brother said made sense. I didn't want it, but the choices were limited. After the myasthenic crisis, I knew that it would be quite easy for me to die just trying to continue what I had been doing.

When absolutely no one agrees with you, does that mean that maybe you are wrong? When I talked to any friend or family member, not one of them agreed with me about continuing to live life as I previously had. All of them told me I needed to pace myself. I am not a "pace yourself" kind of person. However, after a lot of pondering it occurred to me that all the people I encountered from family to friends to coworkers loved me for me and not for anything I had done. All of them asked or begged me to stop doing so I could continue to be (as in be alive).

So now I had come full circle. As a child I felt loved apart from anything I did. As a wife I felt rejected no matter how hard I tried. Then I felt loved for all I was doing and now I realize that I am loved just by being who I am.

This has been a very hard lesson. I feel kind of lost, trying to find my place in this world once again.

The only reason I know things are under control is because I believe in the One who has control.

Now for the last part of the title of this blog...Thankfulness. Leading up to Thanksgiving, there have been a lot of people who are posting what they are thankful for. This is a great thing, but one thing I have noticed, is that all the things listed are nice things like family and food and friends and nice possessions. While it is appropriate to be thankful for these things, I believe that it is also important to be thankful for things like anaphylaxis and myasthenia  and painful relationships and struggles of every kind, because it is in the struggles that we learn the most important things in life. Carbon turns to diamond under intense heat and pressure. People shine more brightly when they let the heat and pressure of life transform them.

"Consider it all joy, my brethren, when you encounter various trials, knowing that the testing of your faith produces endurance. And let endurance have it's perfect effect that you may be perfect and complete, lacking in nothing. James 1:2

"My grace is sufficient for you, for power is perfected in weakness." 2 Corinthians 12:9

BTW-I haven't given up on getting better. Never, ever give up!